Project Title:

A model transition clinic for young adults with developmental disabilities and vertically-acquired Human Immunodeficiency Virus (HIV).

Principal Investigator/Program Director:

Niraj Sharma, MD, MPH

Other Investigators and Departments (or other Universities, if applicable):

Elizabeth Willen, PhD, Ana Garcia, LCSW

Community Based Organization-Collaborator (if applicable)

 

Funding Source (e.g., NICHD, NCI, Dept of Education, Children’s Trust):

Florida Developmental Disabilities Council

Annual Direct Costs:

$25,000

Annual Facility and Administration Costs (F&A) and Rate, (e.g., 53%, 10%):

 

Total Project Award (Combined Direct and F&A Costs):

$25,000

Dates of Award  (if pending, indicated  Pending):

Completed 3/31/07

Lay Abstract (in space below):  Please be concise (space below will word wrap and expand)

Please include:  (a) Specific Aims, Objectives, and/or Hypotheses of the study; (b) Participants (disease or disability, age, gender, child, family, etc), (c) Project type (eg., descriptive study, service demonstration project, case study, ethnographic study, clinical trial); (d) Brief description of methods and procedures; and (e) anticipated outcomes/benefits

Through focus groups, learn the needs of adolescents and young adults with perinatally acquired HIV to aid in their transition from pediatric to adult centered medical care.  Similar focus groups will be conducted with the care givers of these patients.  Based on the results, a model transition protocol will be developed to aid in this process.

Abstracts and/or Publications Resulting from the Project:

Future of Pediatrics Conference 2007